What is Learning Disability Matters for Families?

It is primarily for parents and carers of children and young people:

  • Who have been identified as having a learning disability
  • Who have concerns that their child or young person MIGHT have a learning disability.

What will it cost to use?

Nothing – it is completely free to use.

Why does this matter?

Children and young people with learning disability often have different needs and will likely need reasonably adjusted services and support. The ‘Learning Disability Matters for Families’ webapp gives parents and carers straightforward, pragmatic, realistic information that is aimed to help them day to day, know where to go for further help and understand what they are entitled to.

We hope it is really straightforward to use and includes a range of tools, resources and films to

  • Explain what a learning disability is and what it isn’t.
  • Films of families of children and young people with learning disabilities sharing their experiences and giving helpful advice, positive examples and practical information of where to go for further help.
  • Health conditions to look out for and advice about what to do.
  • Make sure they know about their rights about reasonable adjustments to services.
  • Give examples of what voluntary sector organisations are able to do to support parents and carers of children and young people with learning disabilities.
  • Provide advice and guidance about the sorts of services that can be helpful.
  • Information about the importance of children and young people being on the G.P. learning disability register.
  • Provide explanation about why it is important that the G.P. practice know that parents and carers of children and young people with learning disabilities are included on the G.P. carers register.

 

How has Learning Disability Matters for Families been made?

Learning Disability Matters has been developed by a small steering group led by the North East and Cumbria Learning Disability Network. This group of people have been fully committed, focussed and energised to see this project through from an initial idea to reality and so we are very grateful to them:

Jillian Allan – parent
Shona Chambers – parent
Julie Coulson – parent

Kirsty Greenwell – North East & Cumbria Learning Disability Network

Amy Hocking – North East & Cumbria Learning Disability Network

Karen Horridge – Disability Paediatrician, Sunderland Royal Hospital

Karen Parry – Inclusion North

Judith Thompson – North East & Cumbria Learning Disability Network

Imagine Creative Solutions based in Sunderland have provided all the technical and design support for this project. We are very thankful to them for their expertise.

Jonathan Ng
Craig Richardson
Liam Richardson
Paul Heron

A huge amount of people have contributed to providing content, being filmed and giving their time, effort, energy and brilliant knowledge to this project – we are extremely grateful for their contribution.

Lucy Craig
Hannah Crawford
Jim Gordon
Celia Harbottle
Gill Legg
Karen McKenzie
Matthew Moon
Steve Noone
Jenny Osborne
Terry Rutherford
Kathy Seed
Julie Tucker
Jo Wilcox